NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

New Topic Post Reply
the mind boggles! Options
Jane.
#1 Posted : Friday, May 17, 2013 10:27:03 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Had case conference this week with human resources, occupational health, line manager and buddy friend.
Occupational health put the case very well on ra/post op.
Human resources has decided to write me off and feels that I can't do my job, line manager doesn't get ra etc (still).
I could waffle on for ages giving me sore hands.

My pay has been cut to half, I can either tell the doctor I'm fine to return to work on recoup (they want more hours than I feel that I can give at the moment) get signed back to work OR tell the doctor I don't feel 100% get signed off BUT on half pay.

Dammed if you do and dammed if you don't.
The meeting wipped me out just seems its all take take take (I know they pay my wages) the equality/disability was mentioned a few times and occupational health did amazing talk on explaining ra.

The ball is in my court to have a chat to the doctor.

Any thoughts/ideas?

Jane
Xxx
Jane.
#2 Posted : Sunday, May 19, 2013 11:13:31 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
My sick pay has been reduced to half pay :(
Jane.
#3 Posted : Thursday, May 23, 2013 1:47:09 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Saw the doctor the other day, had a chat and I still feel terrible.
Signed off for futher 2 weeks.
Dorothy-W
#4 Posted : Friday, May 24, 2013 3:30:35 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/13/2010
Posts: 786
Location: east anglia
oh jane, its awfull i know as i have been there with work,short version,new management lost my work aids,girl i shared job with could do it without aids(also 20yr younger)got worse took ill, time off and left,with hassle inbetween,now on esa and low dla with no job at all,i put up a hard fight but illness got me in the end due to stress,since then have sent cv's but got offered 4hr a week,hinted i'm a liability due to ra mmmm,dont give up or in to them if you can good luck,dorothy
smith-j
#5 Posted : Friday, May 24, 2013 7:41:54 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 714
Jane

What a predicament and unfortunately it does all come down to money vs health.

If you can afford to stay on half pay then do so as going back to work will not help your health one iota. Maybe a few more weeks may find you more able to go back on gradually increasing hours. It really depends on how long you can survive on the money.

I think possibly a call to the local citizens advice bureau to find out what you may be entitled to, if anything, to top up your existing salary may help.

In the meantime, I think you need to sit down and think about your long term plans. If your health does not improve are you going to be able to manage your job long term. Is there an option for medical retirement? Is there another field of work that may be conducive to your health with less hours? There are plenty of jobs out there no matter what the press say, it's just if you fit into the category of what employer's are looking for.

It is not easy for a GP to give you advice when you are suffering from RA. It's not like a broken leg where he can see it is not mended. They have to go off what you tell them and how you feel. I am sure they will give you more time off if you need it but also are just as likely to support you going back to work if and when that is what you want.

To be honest it is all very well me giving you advice, but having RA is such an unpredictable disease. I am managing to work full time at the moment although I am on lots of medication to keep me working. However, I do not know from day to day what is going to happen with my health and sometimes I do feel as if I am travelling down a never ending tunnel with no views forward or to the sides.

I think non RA sufferers should be given the disease for one hour to try on and see how they like it. I can guarantee that 100% of them will not take up the option of further hours of this awful disease.

I am sorry I cannot be of any more help and perhaps you could also talk to NRAS next week who may be able to offer some good advice.

Take care

Jackie
xx
sylviax
#6 Posted : Sunday, May 26, 2013 10:33:37 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Jane
That's an awful predicament to be in - you have my best wishes. RA is such a tough disease and you've been through a lot, it is going to take a long while for you to recover as much as possible. I can only echo Jackie's thoughts that if you can manage on half pay, then it is better to continue to rest for as long as you need. You've had a big op and it will take your body a long time to repair itself and adjust to having a new knee - I'm sure that you will continue to get better, but with RA your body takes longer than average to recoup your vigour. You have such a great fighting spirit, I am sure that you will bounce back, even though it must feel never-ending at the moment.

In my experience I found that leaving work and taking a year to come to terms with my situation helped me a lot - at that time I felt I'd never work again and had to adapt to losing the money and it was tough. Then eventually I felt well enough that I wanted to work again, and yes, there are a lot of jobs out there, but you need to be well both physically and mentally to tackle them, otherwise it's not fair on your work colleagues who have to carry on regardless.

I often think that RA is not just an individual's disease - it affects those around us as well. As a sufferer I have to be realistic about what I can and cannot do, and be honest about what other people need to do. One of the biggest adjustments I have had to face is that I rely more on my husband's income to support the family and whatever I earn is a bonus. My role has subtly shifted from being very independent and career focussed to being more supportive of the breadwinner. And my children have to be more organised and self-reliant too as I get tired and need to rest more, and for that to happen I have to teach them and support them emotionally. So as you're facing this issue, do keep in mind that you provide a lot more to your family than just money - and in many ways being a wife and mother is far more valuable .....

You are a lovely lady and so much more - your spirit and vitality shine through your words - keep hanging in there, with very best wishes - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Jane.
#7 Posted : Wednesday, May 29, 2013 11:11:56 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Lots to update tomorrow x
Paul Barrett
#8 Posted : Thursday, May 30, 2013 1:32:02 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 4/24/2013
Posts: 703
Location: Hexham
sylviax wrote:
Hi Jane
<snip> So as you're facing this issue, do keep in mind that you provide a lot more to your family than just money - and in many ways being a wife and mother is far more valuable .....


Amen to that. Never lose sight of the importance of 'just' being a Mum. As the husband of one, I am constantly appalled at the attitude that stay at home mums are somehow less worthy. Stuff and nonsense. Home maker, financial director, nutritional expert, social hub and overall goddess.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Jane.
#9 Posted : Thursday, May 30, 2013 11:31:00 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
I agree that the importance of being a mum/wife/cook/dog walker/slave to my doggies every whim (including dirty doggy bums I clean)!!LOL and sex goddess! HahahaLove Wub Blushing
But that isn't all going to pay the wages!
I just want to get on with me - i have plenty of life left in me.....I'm not old you know!

The reason why I leave feedback on the forums is to show all of you lovely people my experiences, Some people are able to be work and sadly for various reasons are not able.

Here goes:

Received letter from hr to say they will now give me full pay for a few weeks whilst reasonable adjustments (access to work) are made.
Seen my gp and signed off for a further couple of weeks, and he said that I'm unfit to return to work.

Saw the occupational health doctor this week and he said for me to take another four weeks off sick which I will do, if he said your taking the mickey get back to work pronto then I would do so. i respect his views professional input good or bad to help me back to work. He said looking at me you clearly do not look very well.
So I shall extend my sickness.

Access to work are sending me a form out for me to add onto from last year visit by them, then I arrange to meet up with an assessor. And I've even offered to do elf n safety assessment and access to work while I'm off sick.

Every step of the way I have kept my line manager in the loop with email because it has communication to refer to with dates and I can't be accused of not telling them.

My occupational health team have been fantastic along with NHS/rheumatology/physio respect to these guysThumpUp Smile
What isn't great is a line manager that does not want to know and believes an operation cures ra, and hr that won't be flexible with terms and conditions it lays down, instead implying that I'm too ill to work anymore.Sad

I gave the nras booklet about employees with ra in the work place to my line manager at the case conference but that was tossed to one side and I heard a mumbled I know all about arthritis.

Every single week I'm having to bat off the negativity from the doubters of doom, I just need time to recover and get over the mother go a flare up.

I have a saying since I've been diagnosed DONT WRITE ME OFF and I continue to say this!

Rant over.......x






anne_t
#10 Posted : Thursday, May 30, 2013 8:36:54 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 302
Location: Rainham Kent
Hi Jane,
Thanks so much for all your posts. I really had to read your post twice to see
where the "rant" is. So much depends on our own feelings when we read
others posts. You are so very honest and all your problems relate to many
of us in familiar circumstances over the years. As in all life "it takes all sorts
to make a world" That includes everyone, with or without RA.
I hope your line manager meets her nemisis soon!!!
Keep arguing for your rights. I can understand the need for money but it
sounds as though many people have your best interests at this time.
Hope you do not have to clean doggy bums too many times
Take Care Anne
Users browsing this topic
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.153 seconds.